Waverly's Journey: Baby's first Easter!

Sunday, April 8, 2012

Baby's first Easter!

Have you ever seen a cuter Easter bunny??

Sweet Easter shoes.

3 comments:

AnonymousApril 11, 2012 at 10:16 PM
What beautiful pictures!! Truly love the verse on top of your page...so true!!
shauna
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A, E, e, aApril 14, 2012 at 9:03 PM
oh, Cristen... those pictures are GORGEOUS!!! a few of the whole-family shots are just breathtaking. Really. And one of Kathryn and Jackson kissing Waverly...LOVE it. praying for continued blessings for you!
Erica, Adam, and Co...
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La Familia GarciaMay 2, 2012 at 6:04 PM
AMAZING family pictures!!! You guys look great!
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About Waverly

Waverly was born on May 8, 2011. When she was two days old, we were told she had Lissencephaly, which means "smooth brain". Normally the brain has many grooves, but in Lissencephaly, the brain is smooth and therefore there is less brain matter. When she was ten days old, we found out it was due to a rare genetic disorder called Miller-Dieker Syndrome (MDS). MDS is a deletion on the 17th chromosome characterized by Lissencephaly, which causes severe intellectual and developmental delays, seizures, low muscle tone, muscle stiffness (cerebral palsy), feeding difficulties, and a shortened life expectancy (infancy to early childhood). Waverly has a feeding tube (g-tube), a baby mullet, and an amazing way of causing people to ooh and ahh. She loves to suck on her paci, to watch her big sister and brother, and be held by anybody and everybody. She is our special gift from the Lord!

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Sunday, April 8, 2012

Baby's first Easter!

3 comments: