We are so thankful that we were able to come home this afternoon. Waverly continues to have lots of seizures, but they aren't constant, so we felt it best to bring her home as we wait to try a new medicine. We ended up discontinuing her newest one that we started last month, as we suspect it may have actually made her seizures worse. But we still need to do something about the ones she's having, since they are still more frequent than we'd like. So, back to the drawing board.
Please pray that her seizures would be manageable here at home until we can start a new med. Just tonight, she had over 30 minutes of hard seizures. (And had 10 minutes of seizures earlier today, just minutes after we were given or discharge papers, before we even got out of the door!)
We are pretty tired from the "seizure watch"-feeling like we need to have eyes and ears on her constantly for every little sound and move. So prayers for our strength are appreciated too.