Wednesday, October 22, 2014
The passing of summer into fall this year has brought with it my normal pensive thoughts, and this time I realized why. No matter what is going on in life, what is happening in or around you, the seasons change. There is nothing that we can do to stop it or slow it down. It simply happens. In one aspect, it is God's grace. He keeps things going.
But it represents for me the fact that a time in life is coming that I simply don't want to face. Having a chronically ill child whose condition will eventually take them far too early in life makes you realize that your time with them is far too short. And when that time comes, there will be nothing that I can do to stop it or slow it down. It will simply happen, just like the changing of the seasons. This season of my life will change, and I will be forced to live in the next, whether I like it or not.
I love fall and the beauty that the colors bring. But I know that winter is coming, with its bitter cold and lack of color. Everything will be slower, darker, colder. And so the challenge for me is always to savor the beauty that is here and now, and not fear what is to come.
And oh, how I long for the day when each moment can be treasured with no taint of sorrow or sickness or pain. When each moment is pure joy and worship. Until that day, I will strive to live in hope and expectation, trusting in His goodness to sustain me through these changing seasons.
"He will have no fear of bad news; his heart is steadfast, trusting in the Lord." -Psalm 112:7
Sunday, October 19, 2014
Thursday, October 9, 2014
Wednesday, September 10, 2014
"Is this the name of it? Is this what will take her from us?"
I couldn't help but be gripped by fear at what had become a monster staring at me from my computer screen.
I have cried several times since then. The fear of this virus, that starts just like any other cold or sniffle but turns worse quickly. For children like Waverly, this is bad news. And I am scared.
But I am seeking to remember Who holds her, Who has numbered her days before she was even a twinkle in my eye. He loves her and His plans for her will be accomplished, whether that includes this virus or not, as well as the outcome of that.
Lord, help me trust You. Hear
Wednesday, August 27, 2014
Thursday, August 21, 2014
This is how we spent our day. After a rough night with fever and one throw up, the doctor wanted to see her and then sent her on to the ER for X-rays, blood work, etc. She has aspiration pneumonia and is starting an antibiotic for that, in addition to the one she started last night for a new uti. Thankfully her oxygen sats have been ok although she's had a fever and high heart rate and respirations. She definitely feels bad but wasn't acting too sick so the PICU doctor agreed to let us take her home and treat her here. If she gets worse we will just call him and go straight to be admitted to the PICU. Please pray that she stabilizes more tonight. That her breathing rate and heart rate slows down. And that her oxygen remains good.