Tuesday, September 22, 2015

Physical therapy

Waverly was not too impressed with physical therapy last week! 

Wednesday, September 16, 2015


We've been on this journey now for over 4 years. So you'd think that we are pretty used to dealing with the daily life that is ours. And for the most part, we are. However, today I experienced something that I haven't for a while. 

Usually, I am amazed at my ability to speak of our lives and all we go through with a stoicism of sorts. I can explain how we have to deal with our daughter's mortality with a straight face, and wonder if people think I'm weird for not bursting into tears. I guess it's just something we are used to at this point. 

But every so often it sneaks up on me. Today, it was in talking to my daughter's teacher. I felt the tears start to form and my throat got a lump. Where did that come from? 

It reminds me that even though this is "every day" common for us at this point, it's still hard and a struggle to have to reiterate yet again the seriousness of her condition to someone new and what that means for her and the family. 

So, that is my confession for today.