Wednesday, August 27, 2014


I'm so happy to report that sweet Waverly has been improving every day! She's been on her two antibiotics (one for UTI, one for pneumonia), but she's been stable at home and we are so thankful that she didn't have to stay at the hospital to receive treatment for this! She slept most of the weekend as she was recovering, and was on her bipap all day Friday and Saturday. Since then she's done well on her nasal cannula, and hasn't needed much oxygen through that, and is breathing much easier. She's continuing to cough up stuff, which is actually good to be getting it out of her lungs. Thanks for all of you who have checked in with us!

Thursday, August 21, 2014

Uti and pneumonia

This is how we spent our day. After a rough night with fever and one throw up, the doctor wanted to see her and then sent her on to the ER for X-rays, blood work, etc. She has aspiration pneumonia and is starting an antibiotic for that, in addition to the one she started last night for a new uti. Thankfully her oxygen sats have been ok although she's had a fever and high heart rate and respirations. She definitely feels bad but wasn't acting too sick so the PICU doctor agreed to let us take her home and treat her here. If she gets worse we will just call him and go straight to be admitted to the PICU. Please pray that she stabilizes more tonight. That her breathing rate and heart rate slows down. And that her oxygen remains good. 

Sunday, August 10, 2014

Heart Thoughts- Siblings

They were playing yesterday on a rainy day. Throwing the ball and laughing away, with the typical sibling squabbles that came up occasionally too. And I looked at Waverly laying there in the next room on her mat, and her eyes were talking to me. She even made a few noises. Whatever she was trying to tell me, she was very serious and intent. 

"You want to go play with them?"

So I disconnected as much as I could, hoisted her up, and we went to her siblings and played ball (yes, in the house!). They shared it with her and rolled it to her and helped her throw it. 

Then, the fighting happened. Waverly got selfish and kept holding the ball away from them. "Waverly, give it back!" 

And they'd take it out of her hands. And they'd play a bit more and then "she'd" do it again. She even hit her sister a few times! 

"Waverly, you need to share and be kind," I'd remind her. 

And I had tears in my eyes. Most mothers would give anything for their children NOT to fight and squabble while playing. Goodness knows I could use a break from the older two getting into it about almost everything all the time. 

And even though I was "making" her cause a little trouble, I had to do it. At that moment I longed for things to be "normal". For my 3 year old to want to tag along and play with her older siblings. To have them laughing and playing together, like they were. But I knew that a little squabble would be part of it too. That as a typical 3 year old, I'd have to remind her to be careful and to share and to not be too rough with her sister. So I had her do those things too. Normal siblings play together. Normal siblings fight some too. And for a moment I had a tiny glimpse of what it could be like. 

And they all had a blast.