Yesterday, Waverly started something new and quite sad. She burst out crying in the afternoon, for no apparent reason. We assessed her and couldn't find anything outwardly wrong, but she continued to cry harder than we've ever seen her cry and for longer than I've ever seen her cry for about 30 minutes. She'd cry out and continue for 10-15 seconds, then settle down for 10-15 seconds, then start crying again, over and over. Poor thing had tears and everything. After she finally stopped, she was quiet although somewhat mellow. She did it again yesterday evening, and then two more times in the night. A couple of times after the episode she was really twitchy and would move her head side to side and smile. She was really hard to settle overnight. Needless to say, we hardly slept.
She hasn't had any more of those episodes today so far, although has just not been herself. We took her to get checked by the pediatrician and then got blood work done, but don't have results from that yet. We'll update when or if we find anything out.
My hunch is that it's something neurological, possibly a new type of seizure. Or possibly a reaction to the new medication. Since starting the vigabatrin, she's also seemed to be breathing harder. Her heartrate was also a little elevated today.
So we've been carefully watching her and will see what happens. Please pray for rest tonight.
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