On Monday Waverly had a check up with the pulmonologist. It was a good visit to just check in with him. He did note that her breathing was heavy and a bit obstructive, but wasn't too concerned since her O2 sats are ok. We will continue to check her sats daily (but won't need to keep her hooked up constantly, just do spot checks and whenever we are concerned). He did order a nasal canula for the oxygen we have at home for if/when she gets a respiratory sickness instead of just having to use the blow-by (which would mean sitting and holding it by her nose--not quite as effective). He also ordered a suction machine for her for times of congestion. She has tiny nostrils (random fact!) so this should help. Before we would just use saline spray for her nose and then the blue bulb syringe to suck out her snot! Now we can use the suction machine if needed. I'm sure she'll be happy about that...!
I hope these more clinical updates are helpful to some. I know they are probably boring and some of you don't care about all the details, but I write about it so that others going through this same syndrome can have something to go by from our experience, and honestly, it's a good reminder for me of a brief overview of each appointment!
God Bless you and Waverly. I know what your going through. My Grandson is 30 months old with
ReplyDeleteMDS.We Have been doing all that you mentioned and more.