Well, we are now on seizure meds. Waverly has been having "suspicious movements" for quite some time now, where she kind of flips out her arms (and sometimes feet) over and over while falling asleep. But we weren't quite sure they were seizures, although the past couple of weeks I've come to the conclusion that they are seizure-like activity, at least. But they haven't seemed to affect her much or anything. However, on Sunday while we were at small group, I was holding her upright to give her some head control exercise, and she did a different kind of movement. It was like she was starting to hiccup or gag, but she only made the movement with her core, and had no other outward signs of anything. She did that movement every few seconds for about 60 seconds, and then it was over. As soon as she started, I mentioned it to hubby and told him I thought it was a seizure. Then, yesterday, she was starting to doze off and did the same movement. However, this time she grunted each time she did it (it was almost like she was contracting from her core), and her legs were involved. She did it every few seconds for a good 2-3 minutes, then continued for another couple of minutes but less often (and with a few random twitches in there as well). We went ahead and gave her her first dose of Keppra, per the neurologists instructions, at a loading dose (twice the prescribed dose). We've continued with her regular doses since then.
Thankfully, the seizures were not the big, bad, scary kind. But, it's still heartbreaking to watch your baby go through something that takes over control of her body. To know that it was uncomfortable for her, to see the effects of her brain misfiring. Seizures are one of the things that I've been dreading most with all this, and it looks like we are starting down that road. And for me, that was pretty upsetting. But, we know that even when it seems like all control is lost, He is still in complete control.
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