Waverly's seizures have had a sharp increase since Friday, which also happens to correspond with the latest increase of her new medicine, Banzel. On Monday evening she had a cluster of 7 tonic-clonic seizures in 20 minutes, and then woke up Tuesday and had about 10 in the first 1.5 hours of being awake. We knew she had to been seen, so we loaded her up and took her to our local ER. They checked her over to make sure she didn't have some sort of infection causing the increase. All that checked out fine, so they admitted her to the PICU to help break the cycle of seizures and work on adjusting meds and a plan. They have been consulting with her neurologist at UVA on the plan. She's had some pretty hardcore meds in the ER and late yesterday afternoon to try to stop the seizing, which knocked her out. As soon as she woke up, though, she started seizing again. Today, she's seized pretty much every time she's been awake, but has slept most of the day (from the seizures). She woke up for about an hour around 5:00pm today, but had a big 8 minute seizure at 6:00. She almost needed more rescue meds but stopped, and is back to sleeping again.
Please pray for wisdom on which medications to start/stop, for her brain to respond, and for the seizure cycle to break. Pray for rest for me here in the hospital with her, and for the rest of the family with the added stress. Pray for her doctors and nurses and other caretakers. Pray for the others here in the PICU. I don't often get the chance to talk to other parents or people up here much since everyone is in their own rooms with their kids, but pray that I would be able to reach out to those who need it, and just in general for those here.
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