Medication Changes Not Going Well

We are needing some prayer here. After fulling getting Waverly off of her old medicine (Banzel) that landed her in the hospital, we got her back to where she was before starting that medicine, which was still having too many seizures. So we went with Plan B, Onfi. It's similar to another medicine she's been on for a while, but was growing tolerant to. We started the Onfi on Friday. She went with no seizures on both Saturday AND Sunday! We can't even remember the last time she did that! It seemed to be working, and she was smiling a TON. But, the smiles were a little too much. Like she couldn't STOP smiling. And then it just got worse and worse. 

She now has not slept in 2 days. She's bursting into crying fits at the slightest noise, touch, or stimulation. She's literally laid in her bed all day, and can't stop moving. When we try to pick her up or talk to her, she cries. She's still super smiley too, but it goes back and forth from extreme smiling to extreme crying. And she can't.stop.moving.

Her brain is just waaaaaay in overdrive. It's like there's a terrible neurological storm happening. Her bottom lip is swollen because she keeps biting it. Ya'll, it's bad.  

I have been in touch with the doctor, but we just are unsure what to do. Obviously, the Onfi has helped her seizures, but she can NOT be like this all the time either. She's exhausted. We're exhausted. It's breaking our hearts. This is a medicine we can't abruptly stop, so we are working to see what we can do. We wanted to give it time to work but she is miserable and I just can't let her suffer like this much longer.

I snapped this picture last night of her meds while I wondered, "Am I poisoning my daughter?" The way she is reacting to these latest meds, it seems like it. We are at a loss of what to do. Without medication, she is seizing so much. With it, she's still seizing too much. And with the new ones we've tried, she's having terrible reactions.

Please, pray for her. Pray for her brain to calm down and let her rest. Pray for the doctors and for us to have wisdom. Pray for mercy.