I apologize for the silence here. We have been busy enjoying summer! Waverly has been doing relatively well. She had another uti and saw the urologist. We now are cathing her every 3 hours during the day and have started a profilactic (preventative) antibiotic daily to try to ward them off. Please pray that that's successful in treating them.
We have noticed a slight increase in seizures, most notably the apnic kind where she stops breathing. They seem to occur when she's been extra stimulated or tired. But infections and sickness can also contribute to that so it's hard to tell if it's a true increase or because of her recent UTIs.
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