Vacation pics!

We were so blessed to be able to enjoy a family vacation this year!  Last year hubby and the big kids got to go, but Waverly and I stayed home since she'd just gotten out of the NICU and I wasn't comfortable with traveling with her (I was just learning how to care for her at our home!).  But this year, with LOTS of preparation and planning, we were able to make the trip down to the beach.  It literally took me weeks of calling (DME, hospital down there, preparation to make sure we had all the machines, prescriptions, etc. we needed, etc.), so by the time it was time to leave, I was ready! 

Our oldest got to ride down with her grandparents and great aunt, so it was just hubby, middle child, Waverly, and myself.  That worked out great, and both of the kiddos did wonderfully.  Waverly slept most of the way, and even J took a good nap.  Isn't he adorable?

Johnny's parents have a trailer that they store down at the beach, so we stay in a campground.  Here is a picture of our campsite. 

It was five sites away from the pool, which K absolutely loved the most.  You can see the pool area (fence) to the left.  Beyond that on the horizon is the beach.  It was within walking distance. 

We enjoyed a lot of time relaxing, swimming, reading, playing, and eating!  We all enjoyed lots of snuggles from Waverly, and she enjoyed being a beach bum!

 This is her after swimming in the pool, all wrapped up in a towel. 

 Here she is in her new neck ring.  It's a WaterWayBaby ring, and was really neat.  It basically keeps her head up and afloat, and lets her body enjoy the water.  It was neat to see her "weightless" in the water.  I was able to see her move and stretch in ways I've never seen before.  She's always enjoyed her bath time, but had never been in a pool.  I hope to be able to take her swimming more often and maybe even have some hydrotherapy sessions. 

 K and I enjoyed lots of time at the pool together.  Every moment she could get, she was in the water.  She's never had swimming lessons, but you'd hardly know.  She's all over the pool, even doing flips!  What a big girl!  She really loved swimming with Waverly too!

In all, Waverly did really well on vacation.  She did have 6 seizures during the week, mostly while sleeping in the middle of the night or early morning.  We have an appointment for an EEG this coming week, so hopefully we will be able to see what's going on in there, and have a plan for what to do about all these seizures coming back.  We are so thankful for the Lord's grace and blessing to us in such a wonderful time.  More pics to come!