Waverly continues to have about one big, bad seizure each day for now. We still don't know why or what's causing them. We received an ambu bag from our medical equipment company, which can hook up to oxygen and has a mask to seal over her mouth and nose and, when squeezed, will force air into her lungs. It's basically like giving mouth-to-mouth, but with straight oxygen. Talk about an ominous thing to be sitting on your bookshelf in the main living area. Sheesh.
Please pray for these seizures to stop. I was worried that maybe it was from too much stimulation, but even on days when she's been just at home and quiet, she's still having them. We are supposed to be leaving for vacation pretty soon (yes, I said that out loud, but don't worry, we have ninjas staying in our home while we're away...), and I am nervous about her having them while away from home.
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