Waverly was discharged from the hospital yesterday, and we are settling back in at home! She is up to full feeds, but is on a continuous feed at 40mL/hour. She's now completely off the ketogenic diet and is on Pediasure Peptide. At some time in the future I am considering trying her on a different formula made from foods. But for now, this is the easiest for her to process. We are still being aggressive with breathing treatments, and are working on keeping her and the older children apart as they have been sick with coughing, snotty noses, and fevers. (The middle one is on antibiotics now for an ear infection too.) I am taking the next few days to "dig out" in the house, reorient, love on all my babies, and recoup from a busy, tiring few weeks. We are hopeful that she will continue to improve and be back to "normal" soon.
For now, prayer requests are that she will continue to tolerate her feeds and new formula, that her seizures would not increase as a result of being off of the ketogenic diet, and that our whole family would be restored to health.
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