Today is Waverly's last day of the Prednisone dose in treatment of Infantile Spasms. We are so pleased with how well it's worked for her! She hasn't had any seizures at all (IS or other type) since October 31st! We are so happy to have our girl back, too, smiley and talkative! Please pray with us that the seizures, especially the Infantile Spasm type, will stay away. Her neurologist said that 30-40% of the time, the IS will return, usually within a month. The longer amount of time they stay away, the better the outlook is that they won't return. So, there is a chance they could come back, even within the month. If that happens, we already have a plan in place of a new medication to start to give her body a break from the steroids. But of course, we'd rather them just not come back so we don't have to go that route. If we do need to start a new medication, it's called vigabatrin. We are a little concerned about it because it can cause vision loss, although supposedly just in the peripheral vision. However, we still would not like her to lose even the peripheral vision, so we'd rather not have to use that medication. Thanks so much for your prayers for our girl. Can you believe how chubby the steroids have made her?!?
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