Waverly's Journey: Baby's First Christmas

Sunday, December 25, 2011

Baby's First Christmas

Baby's First Christmas!

We had a hard time getting a decent pic of all the cousins together. The girls all had matching dresses...so cute! This is the best pic I got though!


Family pic.

As I took Waverly in later in the day to change her out of her poofy Christmas dress I realized she was awake and happy and the light was perfect for a photo op. I couldn't choose which pic was best, so here are all of them!

One last Christmas-y outfit pic of a very chubby-looking girl!

1 comment:

A, E, e, aJanuary 7, 2012 at 8:15 PM
FANTASTIC pictures!!!! So great of Waverly alone and a GREAT GREAT shot of all 5 of you! Love it.
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About Waverly

Waverly was born on May 8, 2011. When she was two days old, we were told she had Lissencephaly, which means "smooth brain". Normally the brain has many grooves, but in Lissencephaly, the brain is smooth and therefore there is less brain matter. When she was ten days old, we found out it was due to a rare genetic disorder called Miller-Dieker Syndrome (MDS). MDS is a deletion on the 17th chromosome characterized by Lissencephaly, which causes severe intellectual and developmental delays, seizures, low muscle tone, muscle stiffness (cerebral palsy), feeding difficulties, and a shortened life expectancy (infancy to early childhood). Waverly has a feeding tube (g-tube), a baby mullet, and an amazing way of causing people to ooh and ahh. She loves to suck on her paci, to watch her big sister and brother, and be held by anybody and everybody. She is our special gift from the Lord!

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Sunday, December 25, 2011

Baby's First Christmas

1 comment: