Endocrinology appointment

Today Waverly had an appointment with an endocrinologist at UVA as a follow-up from her discontinuation of the prednisone.  It's part of her being in the study as well.  They wanted to do tests on her to make sure her body has resumed its own production of steroids after being on such a high dose for so long with the prednisone.  They drew blood for a baseline, then gave her ACTH to see how her body would react to being stressed, then 30 minutes later drew blood again to see what her levels were.  The doctor said he was pleased with how her body responded, although the levels were a bit on the low end.  So now we have a prescription for hydrocortisol (I believe).  If she gets sick, then we are to give it to her to help boost her body to fight off the virus/infection/etc.  We'll do that for the next year.  By that time, she should be back to where she produces enough on her own that she won't need it.  We are also supposed to take her to the ER if she is more than just a little sick and we can't get seen right away so she can get the medicine intravenously.