She's also been super junky in her lungs, and has yet another UTI (her 6th). Please continue to keep her in your prayers. When I sit back and think about what typical kids are like at 17 months old, running around, playing outside, etc my heart breaks as I look at my baby who sleeps most of her day and the other part of her day is spent in breathing treatments, dealing with seizures, etc.
But even at that, as I've watched a few mothers of children with Lissencephaly recently have to watch their precious little ones slip away from them, I am thankful to have more time with her.
When we were told of her condition, all the research says most children die before their second birthday. As we enter the fall and winter months ahead, with the promise of Spring on the other side, I can't help but wonder how much longer we have. Her second birthday is in May. In many ways we are blessed that she is still with us. And we see many children with her condition outliving those statistics these days. However, one of those precious children that just passed away this weekend was only 2. So as you lift up our precious girl with all her current struggles and issues, please take some time to pray for those families who are also struggling with their little ones, as well as those who no longer have their babies to hold.
Oh Cristen, I can't imagine the conflicting emotions and heartbreak you must feel as a loving and doting mother. Your honesty and openness is a witness to others as you wrestle with this precious trial/blessing. God bless you in the months and years ahead... Words fall short of what my heart wants to say. But you can know that you are consistently in my thoughts and prayers. Love you, girl.
ReplyDeletePraying for you guys every day.
ReplyDeleteYour sweet baby girl is precious! I am in a community group with Sue and Hugh Turner and we have been praying for you and your family. God gives us special gifts and you have been extremely blessed by a very special little angel. Sometimes God permits things in our lives that we might would like to change, but He does that in order to speak though our lives and that it would be a testimony to others. "Praise be to the God and Father of our Lord, Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in our troubles, so that we can comfort those in trouble with the comfort we ourselves have received from God". 2 Corinthians 1:3-4. Praying for your sweet baby and for you!
ReplyDelete