Tuesday, October 9, 2012

Back inpatient

Waverly is back at UVA after a rough day with lots of long seizures, both infantile spasms and focal seizures where she turns blue. Johnny is with her tonight and tomorrow so I can work (yes, I started a full time job last week!), and then I'll head up there tomorrow night and stay till the weekend if she's there that long. We are looking to start a new medication for the time being while we wait for an appointment at DC Children's Hospital to start the ketogenic diet.
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1 comment:

  1. AnonymousOctober 13, 2012 at 1:36 AM

    Daron has been seizure-free for two weeks now on ketogenic formula (KetoCal). I am praying it works for Waverly also.
    Hugs,
    Katya Garland.

    ReplyDelete

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