Not much improvement

Please continue to pray for Waverly as she battles these Infantile Spasms.  We haven't seen much improvement since we've been working on medication increases.  She is now at her max dose of the Sabril, which specifically treats the IS.  We have increased her Topamax too, which isn't specifically for IS but is for seizures in general, and she continues to have them as much as before.  The doctor isn't really keen on doing more steroids, and we couldn't until just recently since she had an infection (UTI).  We did get a few really sweet smiles out of her yesterday, but in general we aren't seeing much of them anymore, and it breaks my heart to see her struggling so much.  I hate seizures and how they steal life away.....