Hypsarrhythmia

The good news is that we were able to come home today.  Unfortunately, though, the results of Waverly's EEG show that she is not only having the Infantile Spasms, but her brain waves are back in hypsarrhythmia again.  Basically, that means her brain activity is very chaotic and disorganized with lots of spikes and epileptic activity.  If you recall last year when the IS had first started, after just two weeks her brain was so fried that she was "gone" for quite a while.  She lost her smile, her eye contact, her head control, her coos, everything.  It was a really hard thing to see.  Although she isn't quite "gone" from us yet in that sense, I had been noticing the past week or so that she's been a lot sleepier than normal, and not as talkative and smiley.  So I know the hypsarrhythmia has already affected her brain. 

The other bad news is that the neurologist said that each time the IS come back, they become harder to control.  Given that she's already close to the max dose of her specific IS medication, we are going to aggressively increase one of her other seizure meds that some say treat the IS (but it isn't typically first used for IS treatment).  We've already begun that increase with tonight's dose, and are praying for quick results. 

Would you please pray with us?  Pray that the increase in meds works, that the IS don't steal her away from us again, and that her other seizures (which we've seen more of as well) would respond to the increase also?  She also has been very junky sounding, and after this morning's breathing treatment in the hospital, has been coughing a lot.  I'm hoping that it was just that the respiratory therapist maybe went a little too far back in her throat when suctioning and irritated it, but her sats have been a bit lower since coming home and her heartrate has been a little higher too, and I'm nervous.