We are just checking in to say hi and give a quick update. Last week Waverly saw her pulmonologist (lung doctor). It was a regularly scheduled check up with him (every 6 months or so). He expressed concern over her breathing sounding so junky and being so shallow. He diagnosed her with chronic bronchitis (add it to the list!) and is working on getting a "shaky vest" (technical term?) and a cough assist machine for her to help her loosen her secretions and get the junk out of her lungs. She's sounded bad for a few weeks now, but is mostly upper airway/chest, so we are just keeping an eye on things and being proactive in her treatment so it doesn't turn into something worse. We will also continue with albuterol and saline nebulizer treatments to help her get it up and out as well.
Her therapy the other week went well. It's kind of a "time will tell" thing as far as how much difference it is making, but we are continuing to work with her and will see how she does over the next several weeks. She goes again this week. We have been running a few fundraisers to help pay for the therapy and travel to get there, and have been amazed at the response! We are once again so thankful for the Lord's provision and for how many people are just asking us how they can help out. THANK YOU to the many many people who support our girl and our family. We are blessed to have you along for this journey!
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