EEG Results and new med

Waverly had another EEG today at UVA.  It was ordered by her previous pediatric neurologist, who is now no longer at the practice.  We really liked him, especially since he helped resolve her Infantile Spasms, so I was nervous about getting a new neurologist since we liked the old one so much.  But, in this week we have already gotten two phone calls from him personally.  That's a good doc in my book!  (Apparently, when you call and say your baby has had 17 seizures in the past month where she's stopped breathing, you get really fast and personal attention!) 

The results from her EEG were pretty comparable to her last few.  She has really high amplitude with high spikes, and it's very disorganized.  That's to be expected and is normal for her.  They didn't capture any seizures, but she was only hooked up for a short time.  So, no change in her EEG reading. 

In the meantime, we are adding a new seizure medication to the list.  She'll be starting Topamax to see if we can resolve all these nasty seizures she's been having.  As of last night, she's had 18 breath-holding seizures.  That's 18 times that we have seen our baby blue, that we have begged God to give her one more breath, that we have had to run to her side and watch her eyes roll back and forth. 

Please pray that this new med will work, and that she will not have negative side effects.  One of the biggest side effects from it is difficulty in regulating body temperature, so please pray especially for that, especially since it's summer time and heating up.  We don't have central air conditioning, but we do have window units, so pray that she stays cool enough inside.  It will also mean that we have to limit her time outside, so if anybody wants to come and take the kids out in the evenings when we will have to keep her inside, please let me know!