A few weeks ago, we took Waverly in for a chest x-ray, because her pulmonologist wanted her to have one when she was relatively healthy, for her, to see what a "good" x-ray looked like (to compare with when she's sick). The result of that x-ray was not great: she still had several areas that were hazy and streaked, including a couple of bigger areas. So he ordered a culture of a sputum sample to see if any bacteria grew out of it.
We just got the results of that last week and it ended up growing three
"bugs": the bacteria pseudomonas (what used to infect her with the UTIs
so badly), klebsiella, and staphylococcus aureus. This isn't good news,
and I'm not quite sure why she's not really sick with it. But the doctor
called in the antibiotic cipro for us to have on hand and give her as
soon as she shows signs of more sickness. The issue with cipro is that she's used it a couple of times before, and every time we use it, it's one less time that we can use it in the future, because it will eventually stop working as the bacteria becomes resistant to it.
She's had a ton of seizures today, and is sounding a little more junky, so I'm kind of waiting to see if she's starting to get sick again. Time will tell. She's been getting pretty sick with respiratory stuff about once a month, so in that regard, it is about time for her to get sick again. Of course, we'd love for her to prove that time table wrong any time, but recently that's been her trend.
Please pray with us regarding this latest news. It's been kind of hard for me to hear, for some reason, as I worry that it's just one more step in the wrong direction for her. Pray that we would trust the Lord, no matter what the future may look like, that we would have hope, and mostly that He would be glorified.
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