Waverly continues to be on the brink. She spiked a fever Thursday night but hasn't had one since. But her need for oxygen has been higher than it ever has, needing as much as 4 and 5 liters at times just to keep her at 90%. She was asleep in bed an hour ago, and is now back downstairs with us as she woke up and was at 85%, and wouldn't come up even at 4 liters of oxygen. So she is now receiving more breathing treatments, suctioning, etc. She's still coughing lots of junk up, although not coughing continually like she was at my last post. She's on antibiotics yet again and steroids to try to help her breathing improve. I really feel like she'd benefit from more pressure support through a cpap or bipap, but we still don't have one yet (grrrrr!!!!), so we just turn up her oxygen, continue constant breathing treatments, and wait and hope to keep her home.
I know that many others would have already had her at the hospital by now, but she truly could be hospitalized way more often than we take her. Although we don't know how short or long her time with us is, we really want her home with us as much as possible, as long as it's best for her. So we work hard to keep her here.
I know so many of you pray for Waverly, and for our family. We are so thankful for those prayers. We need them so much.
Hi there sweet family. Don't know if you remember us, but we went to JMU and were in IV and sort of knew you thru other friends...anyways, I stumbled upon your blog a while ago and have been following ever since with much prayer. I know this is so difficult and draining physically and emotionally, but know our little family is praying for you. For sleep to be multiplied, for a joy even in the mundane, and even for laughter for everyone from time to time. Praying for your marriage to be strengthened through this...for finances to be there, for bosses to understand and be ever compassionate, for her sibblings to be courageous and empathetic the rest of their lives because of their precious sister...for Waverly to experience the greatest joys in this life through your never ending love....and for ever more treasure in Heaven because of your devotion and love for His precious girl. Warmly, Andy & Alexe' Weymouth (Hendersonville, NC)
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