On Wednesday evening, we noticed that Waverly seemed different. She was
extremely smiley (which was nice), but then would cry out a lot as
well. She was also very twitchy, and didn't sleep well that night. She
was fussier than usual on Thursday with a few crying episodes (she
never cries), and overnight as well, but mixed with episodes of constant
smiling and movement. She had more crying episodes on Friday, and then
on Saturday cried for several hours. She also was very restless during
the day and didn't nap much Thursday thru Saturday. We finally just
took her to the ER on Saturday to get someone to look her over and
assess her. They also tested her urine for a UTI, since the only other
time she cried inconsolably like that was when she had her UTI. That
test came back negative.
At that time we were thinking it was maybe something neurological,
given the mixture between extreme happiness and bouts of inconsolable
crying.
The ER doctor said she thought it was
gastrointestinal. Since then we've noticed her urine output has been
lower. For instance, this morning she woke up dry, after her nighttime
continuous feed. We did decrease her rate a little overnight to see if
that seemed to help, but she still got 300mL total.
For her feeds today she got two boluses of Pedialyte and two of
formula. She's had one crying episode today that was pretty short. We're just not sure what is going on, so we are in touch with several of her doctors and will see what they have to say. Please pray for her, and for us. Today has been a much better day than yesterday, but I am still concerned.
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