Follow-up EEG

Last week we had a follow-up appointment at UVA for a four-hour EEG and consult with the neurologist. Her EEG was much improved, confirming the fact that her Infantile Spasms, and other seizures, are much better/gone for now! We are so thankful for the excellent results. The doctor was also very pleased with her response to treatment so far. We will continue to be in close touch with him up there, as well as keep close monitoring of her here with doctor's appointments to check blood pressure, electrolytes, weight, glucose, etc. Now we are just waiting for her personality to return to us as we continue the medication course (we are in the process of decreasing the dose every 5 days till she finishes up on December 8th). Once she finishes, the doctor said there is a 30-40% chance of the IS returning. So we will of course keep a close eye on her and will treat with a different medication if that happens (to give her body a rest from the steroids).