Neurosurgery appointment

Just a quick update from our appointment with the pediatric neurosurgeon this week. (Isn't it crazy that my baby sees a neurosurgeon?!?) It was a very encouraging appointment. She checked Waverly's head to make sure the fluid wasn't putting too much pressure on things, and it looks good, so no shunt is needed. (She has extra fluid in her lateral ventricles, which is taking up some of the "open" space where the brain matter should have been. As long as it's just taking up the open space and not creating pressure on the brain, then she is ok.) She also checked the sacral dimple on her spine, and said that looks fine too. She was really encouraged by Waverly's ability to track, or follow things, with her eyes. She said that was wonderful! We were so happy to hear such good news! She did talk to us about her head shape. Basically, Waverly likes to turn her head to the right, and her head is starting to flatten some on that side which is pushing it forward in the front. (It's also the side where she has the most fluid in her ventricle.) So she encouraged us to be very proactive about preventing her from turning her head that way by placing her on her left side and propping her with blankets or pillows to prevent her from rolling back. She said we should see results from that over the next few months if we are diligent about it, so we will be working on that. (We have been doing it some, but just not all the time.) We also weighed her, and she is now right at 8 lbs! So, she's been responding well to the faster increase in food since last week. We are very encouraged at all these great signs. She is pretty much up to full feeds (60mL boluses during the day, and 30mL continuous at night). We are going to increase her to 65mL boluses over next week and then will keep her there until we hear from the GI doc about increasing it more at our appointment with him in the middle of August. Next week we actually don't have any appointments scheduled for her, I think for the first time since we've been home. We'll see if we can actually keep it an open week, or if something ends up coming up! :) I have high hopes to maybe try potting training with J, so hopefully the week will remain free! Wish me luck...!